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Other Helpful Resources

 

 
  • The American Academy of Dermatology
    930 E. Woodfield Road
    Schaumburg, IL 60173
    847-330-0230     www.aad.org
  • Hemangioma Newsline
    PO Box 0358
    Findlay, OH 45839-0358
    www.hnline.org
  • Birth Defect Research for Children, Inc.
    930 Woodcock Road, Suite 225, Orlando, FL 32803      407-895-0802   www.birthdefects.org
  • K-T (Klippel-Trenaunay) Support Group
    5404 Dundee Road Edina, MN 55436
    952-925-2596     www.k-t.org
  • Children Anguished with Lymphatic Malf. 
    11413 Prestiege Drive, Frisco, TX 75034
    972-377-4326,    email: staycalm@juno.com
  • Proteus Foundation
    4915 Dry Stone Drive, Colorado Springs, CO 80918    719-660-1346   email: abscit@aol.com
  • The Foundation for Faces of Children
    258 Harvard St., #367, Brookline, MA 02446
    617-355-8299    www.facesofchildren.org
  • Vascular Birthmarks Foundation (VBF)
    PO Box 106, Latham, NY 12110   
    email: linda@birthmark.org      877-VBF-4646
  • The National Vascular Malformation Found.
    8320 Nightingale Street, Dearborn Heights, MI 48127-1202       313-274-1243
  • Vascular Anomalies Center
    Children's Hospital Boston, 300 Longwood Ave.
    Boston, MA 02115, 617-355-5226
    Directors: Drs.Mulliken, Burrows, Fishman.
    www.childrenshospital.org 
  • Center for Vascular Malformations
    NYU Medical Center, Tisch Hosp. 560 1st Ave.
    New York, NY 10016      212-263-3991
    Angelina Rodriguez, coordinator e-mail: angelina.rodriguez@med.nyu.edu
  • Birthmarks.com : Internet resource site for information about vascular and pigmented birthmarks.
  • Swedish Medical Center Vasc. Malf. Center
    501 E Hampden Ave #4600, Englewood CO 80110   303-788-4280      Dir: Wayne Yakes, MD
  • Canadian Lymphedema Foundation: this site is to link people in Canada with dysfunctioning lymphatic systems with health care professionals and support groups in their communities and around the world.

 

  • Gorham disease information website: This page is made by a small family in Denmark, because our son has been diagnosed with the "Gorham's Vanishing Bone Disease" or  "Lymphangiomatosis"
  • Dr David Lord
    Vascular Birthmarks Program
    Children's Hospital Westmead
    Locked Bag 4001, Westmead NSW 2145
    Sydney, Australia
 

 

 

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