Need Help?

Other Helpful Resources     The American Academy of Dermatology 930 E. Woodfield Road Schaumburg, IL 60173 847-330-0230     www.aad.org Hemangioma Newsline PO Box 0358 Findlay, OH 45839-0358 www.hnline.org Birth Defect Research for Children, Inc. 930 Woodcock Road, Suite 225, Orlando, FL 32803      407-895-0802   www.birthdefects.org K-T (Klippel-Trenaunay) Support Group 5404 Dundee Road Edina, MN 55436 952-925-2596     www.k-t.org Children Anguished with Lymphatic Malf.  11413 Prestiege Drive, Frisco, TX 75034 972-377-4326,    email: staycalm@juno.com Proteus Foundation 4915 Dry Stone Drive, Colorado Springs, CO 80918    719-660-1346   email: abscit@aol.com Faces PO Box 11082, Chattanooga, TN 37401 800-3-FACES-3 (332-2373)     www.faces-cranio.org The Sturge-Weber Foundation PO Box 418, Mt. Freedom, NJ 07970 973-895-4445, www.sturge-weber.com The Foundation for Faces of Children 258 Harvard St., #367, Brookline, MA 02446 617-355-8299    www.facesofchildren.org Vascular Birthmarks Foundation (VBF) PO Box 106, Latham, NY 12110    email: linda@birthmark.org      877-VBF-4646 Hemangioma Hope 8400 Rohl Road, North East, PA 16428 email: CDouganHH@aol.com The National Vascular Malformation Found. 8320 Nightingale Street, Dearborn Heights, MI 48127-1202       313-274-1243 Vascular Anomalies Center Children's Hospital Boston, 300 Longwood Ave. Boston, MA 02115, 617-355-5226 Directors: Drs.Mulliken, Burrows, Fishman. www.childrenshospital.org  Center for Vascular Malformations NYU Medical Center, Tisch Hosp. 560 1st Ave. New York, NY 10016      212-263-3991 Angelina Rodriguez, coordinator e-mail: angelina.rodriguez@med.nyu.edu Birthmarks.com : Internet resource site for information about vascular and pigmented birthmarks. Swedish Medical Center Vasc. Malf. Center 501 E Hampden Ave #4600, Englewood CO 80110   303-788-4280      Dir: Wayne Yakes, MD Canadian Lymphedema Foundation: this site is to link people in Canada with dysfunctioning lymphatic systems with health care professionals and support groups in their communities and around the world. Neurofibromatosis information   Sturge-Weber Syndrome Community: A worldwide community for individuals and families living with Sturge-Weber syndrome. Gorham disease information website: This page is made by a small family in Denmark, because our son has been diagnosed with the "Gorham's Vanishing Bone Disease" or  "Lymphangiomatosis" International Society for the Study of Vascular Anom. (ISSVA): This is a worldwide organization of medical specialists with special interest in vascular tumours and congenital vascular malformations. http://www.myportwinestain.com: A personal informative web-site with useful links and stories.  Dr. Maurizio Rodio - Vascular Surgeon, Aosta / Italy - Useful European website for information on vascular anomalies - Contact: maurizio@rodiovascular.com       Dr David Lord Vascular Birthmarks Program Children's Hospital Westmead Locked Bag 4001, Westmead NSW 2145 Sydney, Australia Dr Philip John - philip.john@sickkids.ca Interventional Radiology Hospital for Sick Children  Toronto, Canada